The DISABKIDS© generic and diabetes specific modules are valid but not directly comparable between Denmark, Sweden and Norway

Objectives: Government guidance promote benchmarking comparing quality of care including both clinical values and patient reported outcome measures in young patients with Type 1 diabetes (T1D).  The aim was to test if the Nordic DISABKIDS® Health-related Quality-of-Life (HrQoL) modules accessed all features of the construct, were internally reliable, comparable and target appropriate in young patients with T1D.

Methods: Data from three DISABKIDS® validation studies in Sweden, Denmark and Norway were compared using Rasch and the graphical log linear Rasch model (GLLRM) to determine construct validity and comparability. Since some items were locally dependent, Monte Carlo methods were used to estimate reliability. Self-report data were available from 99 Danish (8-18 years), 103 Norwegian (7-19 years) and 131 Swedish (8-18 years) young people.

This project was completed after publishing this article in 2020: J. Svensson, S.Møller Sildorf , J. Bøjstrup, S. Kreiner, T. Skrivarhaug , L. Hanberger, C. Petersson , K.Åkesson,D. H. Frøisland, J. Chaplin. The DISABKIDS© generic and diabetes specific modules are valid but not directly comparable between Denmark, Sweden and Norway.Pediatric Diabetes. 2020 August 21(5):900-908. Doi: 10.1111/pedi.13036. Epub 2020 May 20

Primary Investigator: Torild Skrivarhaug and Dag Helge Frøisland

External collaborators:
Denmark:
Professor Jannet Svensson MD, PhD, Stine Møller Sildorf  MD, PhD, Julie Bøjstrup MD, PhD. Pediatric Department, Herlev University Hospital, 2730 Herlev, Denmark.

Svend Kreiner PhD, Section of Biostatistics, Department of Public Health, Faculty of Health and Medical Sciences, University of Copenhagen

Sweden:
Lena Hanberger MD, PhD, Division of Nursing Science, Dep.of Medical and Health Sciences, Linköping University, Linköping, Sweden

Christina Petersson PhD, Department of Nursing Sciences, School of Health and Welfare, Jönköping University, Sweden.                                                                                                      

Karin Åkesson MD, PhD, Professor John Chaplin MD, PhD, Department of Pediatrics, Institute of Clinical Sciences, Sahlgrenska Academy at University of Gothenburg, Gothenburg, Sweden